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Hong Kong Connection：1Q44 and I

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Through the daily life of a caregiver and the care-receivers, we take a look at their hardship and the lack of support to them from the society. Full-time caregiver Janice got married in 2014. Her husband Keith was diagnosed with muscular dystrophy in secondary school and started to use wheelchair one and a half years ago. After getting married, the couple had been confirmed by several doctors that muscular dystrophy was not hereditary, so they decided to have children. However, while their son did not inherit muscular dystrophy, he was diagnosed with another rare genetic disease: 1Q44 microdeletion syndrome. As a caregiver, Janice understands that as she cannot change the reality, she chooses to face the difficulties optimistically.
Category
문화 - Culture
Tags
1Q44, 4Q35, care-giver
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